Blog

 1/31/2026

I am so cold! We have been in a state of emergency here in KY due to weather for an entire week and they are just now letting people drive and leave their homes again. Our driveway is a huge/steep hill of ice so we can’t get up it but we can at least get some groceries delivered. I ordered us some sandwiches and some meds for me. I have yet another uti. I get them non-stop. TMI I’m sure but I don’t care. They are common with MS and they suck and so I am happy I can get meds delivered in 3 hours or less.  MS is different for everyone but we all have some of the same symptoms too and bladder issues are at the top of the list and everything about the disease is uncomfortable and gross and painful and did I mention uncomfortable? I have 3 chronic illnesses…How did this happen? MS. Tuberous Sclerosis. POTS. The universe wants me to die…Well fuck that because I am a fighter and will do everything in my power to live, always have and always will. My family still thinks that me losing weight will help me heal which you don’t heal from chronic illness as it is not possible. They also think I am in the wheelchair because of my MS which I am not but they never ask me anything they just always jump to conclusions. I have let them know I have a blog so they can learn about me if they want so we shall see. Until I remember to write again, have a good one! xoxoxx